Living with PH1, together

Incorporating primary hyperoxaluria type 1 (PH1) management into your life

About PH1
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Welcome to Living with PH1, a site dedicated to educating the primary hyperoxaluria type 1 (PH1) community.

PH1 can present at any time and at any age. When it does, we have resources for you.

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Kidney Stone
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Progressive Kidney Damage Illustration

The most common symptom of PH1 is kidney stones, which form due to too much oxalate being made in the liver.

Too much oxalate can be a cause for concern. Oxalate overproduction can damage the kidneys and can affect your body’s ability to filter waste from the blood and to create urine.

As oxalate is constantly overproduced, it may continuously be doing damage, even when you don’t realise it.

About PH1
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Management matters

PH1 is a progressive disease that may get worse over time. Staying on top of your PH1 management cannot stop the liver from overproducing oxalate. Your healthcare team may recommend approaches to help you better manage the disease.

Managing PH1
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I draw strength from the community

when it comes to knowing that there are others

out there dealing with the same thing.

Laura W.

Mother of a child with PH1

Living with PH1
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Expand your circle of support

Explore resources and materials designed specifically for the PH1 community.

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For those who care

If you are caring for someone living with PH1, we care about supporting you. See the support that can help.



PH1-CAN-00006 | April 2022

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